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This Isn't The Life I Planned....
This is not how I planned my life. I am sitting
here at my
dining room table, viewing the chaos my
house has become.
There are angled bottles with special
nipples on the counter,
dreaming of new Petri experiments
to raise. There are
nursing bras, which are worn and
faded on the left, and new
on the right as Megan has
never been able to turn her head
to nurse on the
right.
There are developmental and educational toys in every
imaginable nook and cranny on the floor; none of which my
daughter is able to manipulate, play, or understand.
My
table is cluttered with developmental charts, growth
charts, and "What to Expect the First Year" predictions;
none of which my daughter has made.
Adjusting to
motherhood can be hard. Adjusting to motherhood
with a
special needs child can be heart-wrenching.
This isn't
the life I planned.
For years, all I ever wanted was
a child. I tried. I begged.
I pleaded. I saw
specialists. I prayed. I argued and
bargained, pleaded and
negotiated with God. All I heard was
silence and continued
buying Tampax every month.
I tried adoption. I bought an
entire nursery of either/or
gender based toys, stuffed
animals, blankets, books. The
birth mother fled in her
fifth month and I sadly packed it
all away into the
attic.
This isn't the life I planned.
A child was not meant
to be. I grieved and made a new life.
I avoided the
malls; it hurt to see mothers walk with their
strollers,
laughing babies, unaware of how their pierced my
heart.
My
grief would soar anew at Walmart and grocery stores
when frustrated and harried mothers would yank children
along, threatening to give them away, to give them
something
to really cry about, to handle them like unloved
second hand
teddies.
I made a new life. A fast paced,
hard driving life. A career
with respect. A clean car.
A self indulgent, manicured nails,
wine while
soaking in the tub kind of life. I never worried
about
stumbling out of bed, and stubbing a toe on a
forgotten
Dipsy. I never fluffed my pillow to find a woobie
underneath.
Yet, when the vomiting began, all the other things that
held such importance began to disappear. My career went
on
leave. My car became cluttered with car seats,
pacifiers,
and diaper bags. Forget wine while breast
feeding, and who
can soak for more than three minutes
without hearing a
fumbling daddy yell, "honey!!"?
This
isn't the life I planned.
During my pregnancy, I
devoured books on developmental
stages. She should be
cooing by now, rolling over tomorrow.
Oh, look! She is
crawling, honey, crawling! I am so proud,
she said her
first word.
But again, all I hear is silence. God,
where are You? Her
birth books are empty. The bookcases
in her room are filled
with stories she can't
comprehend, toys she can't play with.
Stuffed animals that
are sitting, waiting, tags still
attached more than a
year and a half later. Her teeth have
come in, but not
her walking legs. No need for shoes. No
happy
babbling, no first mama or dada. She smiles, she
laughs.
She doesn't crawl. At her first birthday, she is
merely a large happy infant.
And now, she seizes. She
shakes. A 17 pound earthquake that
stops my heart with
every tremor.
Physical therapy. Occupational therapy.
Vision specialists.
Hearing testing. Orthopedists.
Pediatric neurologists. EEGs.
MRIs. Guide dogs. Special
education.
This isn't the life I planned.
But wait....there is
the smile she gives when nursing. A
happy pumpkin
face that shines like a sunrise. Her eye rubs,
signing
she is tired, ready to clock out for the day. A
single left arm that reaches for me to pick her up. The
smell of Johnsons & Johnsons No More Tears that
lingers
in my nose. Open mouthed kisses on my cheek. Giggles
that
are better than the lottery. Painted ruby
toenails. A
drunken sit, wobbling but getting steadier.
Every once
in a great moon, her right hand opens
tentatively, fingers
stretching out.
Maybe, someday, please
God, oh please, maybe the word mama.
This isn't the
life I planned.
But it's the life I grew inside me.
And it's the life I
would never trade for a clean
car, manicured nails or long
soaks in the bath.
It's
Megan.
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